I apologize for the long delay between entries. I ran into some technical difficulties and then life simply took over. But I'm back now.
We celebrated Cameron's 9th birthday yesterday. It was bittersweet. He has come a long way in the past year. However, we still have so far to go to get back to the recovered state he was in before the "bulb incident" (as I now refer to it). I cringe at the thought of all of the years of childhood he has lost. However, I am hopeful that he will heal this year (permanently).
We did sell our house. However, we ran into complications with the other house we were building. So, once we sold our house we put our things in storage and moved into my husbands parents' home temporarily while we made plans for a new home. Our new home will be finished and we will move in less than two weeks now. We were able to design a house that suits us (one story, less upkeep and has space for the treatment equipment), is constructed of non-toxic chemical free materials, contains a four part whole house air filtration system, a three part whole house water filtration system, and a large yard with a salt water pool and gardening area where we will be growing our own organic fruits, vegetables, herbs and grains for the family. The home is also located just outside of the metroplex. For us this means we are still close to work, family, friends, etc; but we are away from the urban EMF's and emissions which blow in the opposite direction. We are very excited to move in and begin living cleaner. I'm expecting we will not only feel better but require less medical expenses as we begin living healthier.
The entire family is now being treated by an LLMD (Lyme Literate Medical Doctor). Each of our treatment protocols are very different. Although we are all afflicted with the same infections, our bodies have responded differently and so we each require a different approach. I'm looking forward to all of us feeling better this year.
I am still homeschooling the children. I've been getting pressured to let Megan go to public school, but am still a bit resistant to the idea. Last fall, that was out of the question completely. Cameron's doctor felt that his immune system was too deficient to handle any infection that she may bring home from school. It was also best for her to be able to improve her own immune system which was terribly compromised by Lyme and co-infections before being exposed to additional bugs. The children have been doing beautifully with their schoolwork at home this year and I've been able to meet their educational needs in a flexible way that no school would have been able to do.
Our Support Group
My husband and I have continued to organize a local support group.
For those in North Texas who are interested in meeting, you can contact
me through Cam's Voice or through the
RANNT yahoo group
site. We meet the second Saturday of each month from 2-4 pm in
This site was last updated 02/02/10